Last year, I was excited to attend NAMI Hawaii’s Annual Celebration and Book Event, and listened to Ken Duckworth, MD talk about the National Alliance on Mental Illness’ first book, “You Are Not Alone: The NAMI Guide to Navigating Mental Health – With Advice from Experts and Wisdom from Real People and Families” (2021).
This book was written “so that everyday people can live well with mental illness.” It includes 130 interviews with “lived experience experts” who share their personal stories with honesty and vulnerability. There are also 35 frequently-asked questions answered by experts.
I was touched by the book’s connection to Hawaii. Dr. Duckworth joked that “You Are Not Alone” started and ended with Hawaii. Kumi Macdonald, executive director of NAMI Hawaii, was the first person he interviewed, and Hawaii was the last city on their book tour.
Three insights really stuck with me after reading the book:
First, “All people experience mental and emotional pain.” If we pay attention and listen, we will find out that we are not alone in our pain. Getting help earlier can improve outcomes, such as getting a mental health screening, talking with a trusted individual, and just being gentle on yourself.
Second, “People are not their illness.” A diagnosis can be a powerful tool in supporting recovery, but it does not define someone. We can treat the symptoms of mental illness (the medical model) and we also need to build strengths and supports (the recovery model).
To build coping skills in children, Dr. Duckworth shares practical, actionable advice, such as martial arts for impulse control, creative arts for self-expression, exercise to relieve anxiety, and sports to build belonging and confidence.
And third, “Recovery involves building a life, discovering one’s strengths, finding a purpose, and being connected to a supportive community that can sustain you despite the symptoms you experience.”
There are some common themes of recovery:
- Acceptance. Accepting the reality of a mental health condition and letting go of the idea of who you are.
- Journey Orientation. Accepting that who you are is an ongoing process
- Self-determination. Deciding on your self-recovery goals.
- Developing belief in oneself. Learning to trust yourself again.
- Faith/Spirituality. Believing in something bigger than yourself.
- Inward/Outward. Looking inward to be present and looking outward for community and purpose.
“You can learn from what helps someone else and, at the same time, acknowledge that one person’s experience is not everyone’s experience.”
The more we share our stories, the more we realize that we are not alone.
Are you in mental or emotional pain right now? If you listen carefully, does someone you know need support that you can provide?